A New Path

In the more than seventeen years since Alex was diagnosed with autism, I’ve found myself spending a great deal of time searching for resources to help him. Often, looking for people and methods that may help him takes tenacity and patience because those answers aren’t readily found. Other times, things seem to fall into place with such ease, and then I know the hand of God is at work in our lives.

Shortly after we discovered that Alex had autism, I began reading Dr. Andrew Weil’s book Spontaneous Healing, looking for ways to make Alex as healthy as possible. In one section, Dr. Weil discusses cranial therapy, a gentle manipulation of the head believed to improve wellness. At the end of the book, a resources section provides contact information to find practitioners who can provide the holistic approaches Dr. Weil describes in the book. After more research, I decided that I would like to try cranial therapy for Alex and wrote a letter to the address provided in the book requesting a referral.

When I received their response, I was pleased and surprised to find a local doctor of osteopathy who did cranial therapy with her patients. This began a decade long relationship with an outstanding doctor who worked cooperatively with us to help Alex. With her expertise in nutrition, chelation, and cranial therapy, she provided Alex with the care he needed to deal with his food allergies, heavy metals toxicity, and other health issues related to his autism. When she had to retire a few years ago due to her own health issues, we felt a terrible loss, and when she passed away last fall, we felt deep sorrow.

Without the guidance of Alex’s beloved doctor, I have been searching for another doctor who would take a holistic approach to his health and would be willing to follow biomedical methods found to be helpful to people with autism. In the past few years, we have been fortunate to find compassionate and competent medical professionals for Alex; however, other than his psychiatric nurse practitioner and a chiropractic internist, their background with autism has seemed rather limited. Moreover, we have sensed that they were more concerned with treating the symptoms than looking at underlying causes. For example, Alex has been diagnosed six times in the past eighth months with thrush and cheilitis, or yeast overgrowth in and around his mouth. While treating the yeast with Diflucan helps the symptoms and makes them better, something is causing the recurrence of this problem. I knew we would need to get to the bottom of this problem, but I was having trouble finding a doctor who would take a more holistic approach. Feeling frustrated, I have prayed for patience and an answer.

Several days ago, I picked up a magazine advertising local business that had come in the mail a few days earlier. Thinking it was junk mail, I nearly threw it in the trash, but I decided to take a quick look. As I flipped through it, I noticed a picture of a building I recognized: the office building of Alex’s former doctor. A closer look at the ad revealed that a new medical practice had been established in that office building by a father and son who are doctors of osteopathy specializing in nutrition and wellness, like Alex’s doctor. After consulting their website listed in the ad and discovering that they offered the holistic approach I had wanted for Alex, I decided this was an answer to prayers.

Without hesitation, I called their office that Friday afternoon to see if they would accept Alex’s insurance and take him as a new patient. After confirming that they could see Alex, the receptionist was able to schedule us for an appointment for Monday afternoon. Last weekend, I felt hopeful that this new doctor would be able to help Alex, and I looked forward to meeting with him. On Monday, we were pleased we didn’t have to wait for our appointment, and I was immediately impressed by the doctor’s manner: kind, understanding, and compassionate. He interacted with Alex easily, and Alex felt comfortable with him during the examination. As Ed and I discussed our concerns about Alex’s repeated bouts with yeast overgrowth, he listened carefully and explained his ideas clearly regarding what he thought was the cause and what we could do to help Alex. Not only was he likeable, but he also inspired confidence, making us feel that we had brought Alex to the right place.

His assessment is that Alex’s immune system has been weakened, leaving him vulnerable to infections, such as the fungal thrush, the bacterial folliculis, and the viral chicken pox, all of which he has had recently. To strengthen his immunity, the doctor recommended high doses of vitamins C and D3. To address his yeast overgrowth, the doctor suggested that Alex take a prebiotic supplement in addition to the probiotic he has been taking, which will help balance his digestive system. To ease the mouth discomfort the yeast causes, the doctor recommended an old herbal remedy, gentian violet. Armed with this information, we have gradually implemented the recommended protocol, starting with vitamin D3, then gentian violet. Next, we will add the prebiotic, followed by vitamin C.

With Alex, we have learned that adding only one new thing at a time is crucial to measure its effects upon him, whether positive or negative, and the doctor wholeheartedly supported our gradual approach to the new supplements. He wants to see Alex in a month to check his progress, and we hope and pray that the next time we see him we can tell him how much Alex has improved, thanks to his help. The way things have moved quickly and easily into place with this new doctor reminds me that God is in control, and when the timing is right, He will bring the right people across our path and give us a sense of peace, knowing that everything will be all right in the end.
 

“Your own ears will hear Him. Right behind you a voice will say, ‘This is the way you should go,’ whether to the right or to the left.” Isaiah 30:21

Supplements

Recently, Alex’s doctor suggested that we add Omega 3 fish oil to his nutritional supplements as a possible way to help his tendency toward dry skin and dandruff. After about a week of adding fish oil, we noticed subtle changes in his behavior, primarily a sense of discontent and some anxiety. Thinking that the timing between the new supplement and his mood changes was not likely coincidental, we took him off the fish oil, and his easy-going good nature returned almost immediately. Through the years we have learned that Alex’s metabolism requires a delicate balance of nutrients that impact his health and behavior tremendously. Under his doctor’s supervision, Alex has tried a variety of supplements, but we always introduce new things one at a time so that we can monitor his reaction and have a good sense of what is causing any changes—positive or negative. Some supplements that have a good reputation for helping children with autism have made Alex extremely hyperactive or agitated, so these were not a good choice for him. A couple of years ago, his doctor recommended that we make protein shakes for him, and after two days of protein shakes and an insomniac Alex, we decided to throw that supplement in the garbage. On the other hand, some supplements have been very helpful and critical to maintaining Alex’s good health.

While Alex has taken as many as four dozen supplement pills a day to address various needs he had at times in his development, he currently takes about twenty pills daily (some supplements in multiple pills), divided into doses after breakfast and before bedtime. The only daily prescription medication he takes is Fluoxetine, or generic Prozac, an SSRI medication to help his OCD. He started taking this around age eleven, and he has been on various doses over the years. Now he only takes ten milligrams per day, a very low dose, but one that seems to keep his obsessive-compulsive issues under control. For many years, he has taken a multivitamin and mineral supplement to balance his nutritional needs. We give him EveryDay Multi-Vitamin from Kirkman, a supplement that is especially developed for people with autism and is hypoallergenic for purity. Since Alex has food sensitivities to milk products, he takes a calcium-magnesium citramate supplement to make sure he has enough calcium in his system. His dairy-free diet also means that we have to give him a vegan form of probiotics to avoid ingesting any milk products. Over the years, Alex has had problems with yeast overgrowth, but the probiotic supplements, especially those with acidophilus, seem to keep his intestines in good working order. To address his environmental allergies, he takes generic over-the-counter Claritin. We had noticed that he acted particularly irritable during allergy seasons, and OTC allergy relief seemed to improve his mood. To make sure he is not bothered by allergens, we keep him on the medication year-round, and his doctor has approved this regimen, as she has with all of his supplements. To calm Alex’s anxiety, he takes GABA, a supplement we order from Kirkman that works much like valium but without side effects or the risk of addiction. Another calming over-the-counter supplement that has helped him tremendously is the addition of New Beginnings Nutritionals’ low-dose lithium drops, which help regulate his mood swings and keep him content. Before bedtime, a critical part of Alex’s routine is taking melatonin, a natural hormone that regulates sleep cycles and safely helps him sleep. Many children with autism lack the levels of melatonin in their bodies they should have, and Alex has definitely benefitted from taking melatonin so that he can sleep peacefully throughout the night without any negative side effects. Besides these daily pills, I give Alex a methyl vitamin B-12 injection prescribed by his doctor twice a week. These B-12 shots help heal Alex’s nervous system and detoxify heavy metals his body is unable to remove from his system, which has been an issue for him. Currently this combination seems to work well for Alex, and we are pleased with his behavior and his good health.

Fortunately, Alex is very cooperative about swallowing pills. When he was about five, I worked with him to help him learn how to swallow pills because I wanted to start him on supplements, and more were available in capsules or tablets than in liquid form. In addition, if Alex didn’t like how something tasted, he was likely to spit it out; hence, pills were the easier route to take with him. Having watched my mom give our family dog pills, I modified her technique slightly, putting the pill in Alex mouth, gently holding his mouth closed, and rubbing his neck to encourage swallowing. While he wasn’t pleased with this activity at first, he caught on to what I wanted him to do, and soon he could take the pills without my having to hold his mouth closed. Since then, he has always been very good about taking any medicines or supplements we have given him and seems to know that we are trying to help him. Part of my Sunday morning routine is counting out his supplement pills and placing them in pill containers marked with the days of the week. This helps Ed, who gives Alex his morning supplements on days that I’m at work, and it makes life simpler for both of us for the evening doses that we share supervising. To prepare for the week, I consult a list detailing the pills and their dosages as I go. In one of Ed’s poems from his book Tidal Air, “Late Vacation at the Cape,” he adeptly describes my task: “She separates the medicine as if she is a pharmacist, always counting out the tally, naming each as she distributes so none of them is ever forgotten.” In addition, we count the pills aloud—sometimes counting in foreign languages for variety—as we give them to Alex, who sees this regimen as a game and happily swallows each numbered pill. At the same time, I count our blessings that this daily routine and God’s grace are working toward healing Alex.

“O Lord my God, I cried out to you for help, and you restored my health.” Psalm 30:2