Showing posts with label skills. Show all posts
Showing posts with label skills. Show all posts

Sunday, February 3, 2019

Testing Testing

As a classroom teacher for more than thirty years, one of the few aspects of my job I truly disliked was giving standardized tests to my students. In fact, retiring from teaching brought relief that I would no longer have to give these dreaded assessments. Knowing these evaluations were often worded in ways that were confusing to my students or bored them with long reading passages that failed to hold their interest, I questioned how accurately these tests could measure their abilities. As I watched some students who lacked motivation rush through the tests simply to get done and others struggle through every minute trying to finish in time, I knew their scores would not reflect what they really knew. Moreover, the general atmosphere of anxiety prevalent during testing among students and staff was upsetting and counterproductive.

My mistrust of standardized tests has only been heightened as the parent of a child with autism. Having been present for most of Alex’s evaluations, I know that they cannot measure accurately what he actually knows and can do. Consequently, on traditional intelligence tests, he scores quite poorly. Nonetheless, we place little value on the IQ values assigned to him, knowing that Alex is smart in ways that the tests fail to measure.

Recently, an enlightening article in The Atlantic addresses the shortcomings of using traditional cognitive testing with people who have autism and offers promising alternative methods. In “IQ Tests Are Biased Against People With Autism,” published December 31, 2018, author Nicholette Zeliadt notes, “…research has confirmed that some autistic people––especially those who speak few or no words––have abilities that standard tests of intelligence underestimate or overlook.” [To read this article, please click here.] In addition, the subtitle of this article states, “For those with poor verbal and motor control, traditional intelligence exams can be a faulty way to measure real cognitive ability.”

Recognizing problems of using traditional testing methods with people who have autism, scientists have recently considered new ways to test cognitive skills. Some have adapted existing tests, while others have developed new tests. In both cases, the goal has been making tests easier to complete for people with autism. Other researchers have employed technology that measures eye movement and brain activity to evaluate skills. While using technology may produce more accurate results, the expense and lack of portability make these methods less accessible.

Although experts cannot reach a consensus about which tests are most useful in evaluating people with autism, researchers note that none of the most commonly used assessments qualify as “a particularly good fit.” In addition, interpreting scores often proves problematic when assessing people who have autism. Many issues commonly associated with autism make testing difficult, such as anxiety, social-communication challenges, restricted interests, and lack of motivation to do boring tasks. Furthermore, poor fine motor control makes pointing, which is required in some tests, difficult, and tests lasting nearly an hour are too challenging for those with attention issues. As Beth Slomine, neuropsychologist at Kennedy Krieger Institute in Baltimore, Maryland, candidly explains, “…the tasks we have that measure cognitive ability are often boring, [and] the tasks don’t always measure what we think they’re measuring.”

At Boston University’s Center for Autism Research Excellence in Massachusetts, researchers have adapted testing for children with autism. To make the process less stressful, the child does not interact with the evaluator. Instead, two pictures are shown side by side on a screen as a recording instructs them to “Look!” Additionally, to keep them interested, pictures of beloved character Thomas the Tank Engine and videos of rockets launching are shown. According to the director of the Center, Helen Tager-Flusberg, “We did that to keep them engaged, to keep them looking––it doesn’t feel like a test.”

Using technology to observe eye tracking, researchers at Bar-Ilan University in Ramat-Gan, Israel, monitor involuntary eye movements as a method of testing people with autism. Under the direction of Yoram Bonneh, associate professor of vision science and optometry, the researchers study “tiny flicks of the eye as it jumps toward something of interest” in people with autism to assess word comprehension. After words are spoken or shown on a screen, two pictures are displayed side by side, with only one matching the given word. Eye movement toward the picture demonstrates word comprehension. This research indicates that adults with nonverbal autism perform as well in this testing activity as typical adults do.

In addition, these researchers show multiple choice questions and answers on a screen without reading them aloud. When the person’s eyes stop on a correct answer, the researchers use this behavior as a measure of cognitive ability. After testing a group of young men with autism who had minimal verbal skills and were thought to be illiterate, the researchers discovered through the testing that these men could actually read. Consequently, this testing method not only proved the young men had the ability to read and understand written text but also demonstrated that their skills had previously been underestimated.

At Rutgers University in Newark, New Jersey, scientists have been using EEGs to test minimally verbal children with autism. As the children watch images immediately followed by hearing a word that may or may not match the picture displayed, researchers use the EEG technology to look for brain activity to indicate the recognition of the image and word. Through this form of testing, the research suggests that the children don’t always connect the words and pictures. Another theory is that children with autism may use other parts of their brains to process what they have seen and heard than typical children do. Nonetheless, using brain wave technology allows scientists to glimpse how the minds work in children with autism.

Clearly, research shows the importance of creativity when assessing people who have autism, considering their special needs and the differences in the ways their brains process information. As Charles A. Nelson, professor of pediatrics at Harvard University and Boston Children’s Hospital notes, “These kids we think are very low functioning, very nonverbal, may have more going on upstairs then we’re giving them credit for.” Indeed, using traditional methods to question those with autism may produce questionable results. Instead, parents, educators, and professionals should seek better ways to assess the skills of people with autism, and more importantly, they must never underestimate the abilities of those whose brains work in mysterious––and perhaps even superior––ways.

“But there is a spirit within people, the breath of the Almighty within them, that makes them intelligent.” Job 32:8

Sunday, February 7, 2016

Keys to Success

 
Yesterday I read an interesting article that made me think about the most valuable skills we can teach children, whether they have autism or not. This article was linked on the Indiana Resource Center for Autism’s Facebook page and was published on their website, which has a wealth of resources and information regarding autism. [To read this article on their website, please click here.] Written by graduate student Anna Merrill, “Tools for Successful Transition: Self-Determination, Resilience, and Grit” identifies three key traits that will help adolescents, particularly those with autism, develop into successful adults. She notes that self-determination, resilience, and grit are important for positive outcomes, such as employment, independence, and a better life for adults.

The first of these traits, self-determination, focuses upon pursuing and obtaining goals, which are needed for a sense of well-being. Ms. Merrill lists several strategies to develop self-determination in adolescents, such as teaching goal-setting and problem-solving skills, encouraging decision making, and promoting self-awareness and self-advocacy. In addition, she provides practical suggestions, including participation in planning meetings, developing listening and effective communication skills, learning to deal with stress and frustration, and self-evaluation of interests, strengths, and weaknesses.

I found these strategies interesting because Alex’s support team––his case manager, behavioral therapist, music therapist, and respite staff, along with Ed and me––all use these approaches to help him make decisions and become more independent. This Wednesday, we will have a quarterly meeting with his team to discuss his progress and needs. As always, Alex is expected to be an active participant because he will need to answer questions, even though verbalizing his thoughts and feelings isn’t always easy for him. Nonetheless, we all know that his input is vital to developing his skills and planning for his future.

The second trait detailed in the article is resilience, the ability to cope despite adversity and the refusal to give up. To deal with challenges, Ms. Merrill notes three important elements crucial to resilience. Specifically, developing positive personal traits, such as optimism and self-esteem, is vital to resilience. In addition, family relationships, including a nurturing environment and a stable home life, help develop resiliency. Along with family support, community support, such as connections with extended family and involvement in community activities, also foster resilience. Essentially, a good attitude and the support of caring people help a person learn to deal with challenges effectively.

Despite the obstacles autism has presented, Alex has learned to be quite resilient. He maintains a positive attitude most of the time and rarely complains about how difficult some tasks are for him, due to his fine motor and communication limitations. In addition to our love and support, he now has a team who provides support, and because his behavior has improved, he has more opportunities to interact with extended family and to engage in community activities, such as music and sports, which he thoroughly enjoys.

The final quality needed for success, according to the article, is grit, which is related to resilience in that grit is the perseverance despite obstacles, the tenacity to pursue goals, no matter what. To develop grit, Ms. Merrill recommends encouraging a growth mindset that emphasizes the value of the process and not just focusing on the outcome. Grit requires persistence, a desire to learn, and valuing challenges, effort, and criticism.

The importance of grit makes sense to me because Alex is one of the most tenacious people I’ve ever known. (I’m pretty tenacious myself, so he may have inherited or imitated that quality from me!) I’m certain that one of the main reasons he has made so much progress over the years is that he never gives up and keeps on trying, despite the obstacles autism has created. For example, if he tries to tell us something, and we don’t understand what he’s saying, he will keep giving us clues until we figure out what he wants to communicate. To watch him eat is often a lesson in grit because his fine motor skills can make eating difficult. Nonetheless, he never gives up poking or scooping with his fork until he is able to get food in his mouth, which is the reward for his efforts.

After detailing the three qualities needed for success, this article also discusses what may hinder the development of self-determination, resilience, and grit. The author notes that parents may prevent their special needs children from developing these important traits with the best of intentions. Specifically, parents may want to protect their children or may not want them to fail, so their children do not develop these qualities necessary for success in life. She recommends that parents focus more on long-term goals than daily goals and push out of their comfort zones, which is in the best interest of their children so that they may successfully become independent adults.

With the best of intentions, I have been a full-fledged helicopter parent to Alex, I admit. Because he could not speak well, I have been too quick to speak for him. Because fine motor skills made basic tasks difficult for him, I have been his extra pair of hands. Because I feared for his safety, especially since he is naively trusting and doesn’t always sense danger, I have held onto him tightly. And for less noble reasons, sometimes because I was in a hurry, I did things for him because it was faster and easier than waiting for him to do it himself. Although I have enabled him in many ways, I know that he must learn to be independent because I won’t always be around to fix him a snack, or zip his jacket, or remind him to go to the bathroom before he leaves the house.

Because Alex has learned good coping skills and is less likely to become overwhelmed, we have been encouraging him to make his own decisions. At first this was difficult for him because he was used to us telling him what to do. After teaching him how to weigh his options, he is becoming quite adept at making reasonable choices, and he seems to feel proud that he can decide for himself. In addition, I am learning to walk away and let him do things for himself instead of watching him struggle and then taking over for him. For example, he may have to take a dozen attempts to hang up his jacket, but I can’t grab it out of his hands, or he’ll never learn to do it on his own. With more practice, he’s getting much better at hanging up his coat in fewer tries, but more importantly, he feels a sense of pride for doing this task by himself.

This sense of independence has carried over in other aspects, as well. Recently, Alex has begun consistently bringing his dishes and forks to the sink after he’s done eating without being reminded to do so. In addition, he has become more involved in planning his schedule, making sure that we know the dates and times of basketball games or television shows he doesn’t want to miss. Also, he has shown more autonomy in his health, letting us know when it’s time to take his pills and wanting to learn all the names of them, identifying them by color and shape. Rather than relying upon us for every aspect of his carefully planned schedule, Alex is becoming more self-reliant, and he likes being a more active participant. With these small steps, he works toward our ultimate goal––independence, and we know that God will be with Alex every step of the way.

“So we keep on praying for you, asking our God to enable you to live a life worthy of His call. May He give you the power to accomplish all the good things your faith prompts you to do.”  2 Thessalonians 1:11