Since Alex came home from the hospital in June, he wants to
be with Ed or me almost constantly. I think he is making up for lost time, the
days he spent in the hospital where we could only see him for an hour or two
during visiting hours. Our presence seems to reassure him that he is, indeed,
finally home. In fact, the rare times that he is alone, he’ll come looking for
us and ask us to “visit,” clearly a reference to his hospital stay. During the
months leading up to his hospitalization, he wanted very little to do with me,
which was sad and confusing, as he would inform me, “Mommy is leaving now,”
which was essentially telling me to “bug off” and leave him alone. Instead, he
just wanted Ed to take care of his needs, which I figured was some type of
developmental phase where he needed to separate from his mother and identify
with his father. Nonetheless, I missed him for a long time.
Now, I spend several hours a day with Alex at his request.
Most of the time, we just sit together--sometimes he’s sitting and thinking
while I’m reading; other times, he has me read aloud to him. While he used to
spend hours reading alone, I think the medications to keep him calm also may
make focusing on reading difficult, so he prefers listening to me read instead.
Also, I think he enjoys this as an activity we can do together, rather than the
solitary act of reading. Sitting with him is an interesting experience because
I gain insights into how his mind works as he comments on various things. For
example, he often blurts out random foods: guava, cupcakes, salami, bananas,
meatloaf, etc. Most recently, he’s added porridge to the list of foods,
inspired by his recent revived interest in the story of Goldilocks and the
Three Bears, I’m sure. I suppose he’s frequently thinking about what he wants
to eat because he’ll also say the names of random restaurants: Noodles and
Company, Culvers, The Coop, Martini’s, etc. Although the food blurting
continues throughout the day, the restaurant blurting usually only happens in
the afternoon, prior to dinner. I guess if he doesn’t have a lot to occupy his
mind, food is as good a topic as any. Alex has always shown an interest in
food, watching the Food Network Channel from the time he was a toddler and
referring to all of their chefs on a first-name basis. Fortunately, his
appetite and willingness to eat a variety of foods have always been excellent,
and he has not been affected by the dreaded medication side effect of potential
weight gain, maintaining his slender, lanky build.
Another activity Alex requests is making random lists. He’ll
give me a topic, such as animals, NASCAR drivers, or famous people’s ages,
weights, and heights. Sometimes, we’re able to come up with the information on
our own, and other times, we have to do Google searches to get the data he
wants. Yesterday, we worked on coming up with an animal for every letter of the
alphabet. I was amazed how quickly he could come up with the names of animals,
often unusual ones, such as armadillo and zebu, especially since he’s never
shown a great deal of interest in animals, unlike most children. The only
letters that stumped us were u, v, and x, which led us to a Google search for
those elusive animals to complete our alphabetical list.
Besides Google searching, we put my laptop computer to good use for
other shared pastimes. Alex has always enjoyed online shopping, especially
searching for books and gadgets on Amazon. Lately, he’s been checking out
everything from NASCAR driver banners to hang in his bedroom to books about
time to talking clocks. Fortunately, he had not spent all the money in his
Amazon account that his aunts and uncles gave him last December for his
birthday and Christmas, so he’s been able to purchase many of these items his
heart desires. Of course, he likes to comparison shop, making sure we get the
best deal, and this allows him to savor the experience even longer. In addition,
I always make him wait twenty-four hours before making his final purchase to
make sure that’s how he wants to spend his money, which is another way to make
the shopping fun last. Another favorite
website we explore together is You Tube, primarily to watch music videos of his
favorite singers. This week, we’ve watched nearly all of country music singer Shania
Twain’s videos, and I introduced Alex to one of my guilty pleasures, videos
from the 1970’s television show and its manufactured musical group, The Partridge
Family. While Ed will probably think I’m corrupting Alex by exposing him to this kind of
pop music, I feel Alex needs some relief from the Bob Dylan music that he
listens to with Ed.
At some point, Alex’s need to be with Ed and me almost
constantly will fade, and we will respect his wishes to be alone again.
However, until that time, we will stay close at hand, entertaining him and just
being there for him. Sometimes, I will leave him for a few minutes to get
something or do laundry, only to find he has followed me, waiting patiently for
me to rejoin him. Yesterday, as I was putting clothes in the washer, he
followed me down the stairs and asked me to come stay with him. After I started
the washing machine, I followed him and honored his wish to join him, which
made him happy. Wondering when he thought he might get tired of having me
around, I asked Alex how long he’d like me to stay, thinking he’d give me some exact
amount of time. Without hesitation, he replied, “Stay forever.” Oh, Alex, I
wish I could stay with you forever; I just pray that I’ll be with you as long
as you need me.
“And I am sure that when I come, Christ will richly bless
our time together.” Romans 15:29
