As I explained in my last two blog entries, “Telephone
Tracking” and “Telephone Tracking Two,” I’ve been spending time on the phone
lately, trying to find information regarding Alex’s blood tests to monitor
recent medication changes and his Medicaid benefits. Fortunately, my tenacity
paid off, as we received a letter from Medicaid this week stating that Alex
still qualified and would continue receiving his disability benefits. This came
as a huge relief that his file had been updated correctly. Also, I called his
psychiatric nurse practitioner’s office this week to get the results of his
blood tests, only to discover that they had never received the test results.
Then, I had to call the lab to request his results be faxed (or faxed again, as
I’m not sure what had happened) to the nurse practitioner’s office. Once they
received the results, her nurse called to tell me that the results were normal
and that he should continue on the current medication dosages. Again, this news
was a blessing because he is responding well to the slight increases in
medication, and we were thankful that his blood tests indicate no problems with
these changes. Although I would have preferred that gaining information about
his benefits and health had not required so many phone calls, I’m pleased that
in the end, the news was good.
While I’ve been on the phone acting as Alex’s personal
assistant, he’s been busily coming up with questions for me to answer. When he
first came home from the hospital this summer, he seemed to be in a mental fog,
his senses dulled by the medications needed to keep him calm. Over the past
several months, he’s gradually emerged from this drowsy state, and we’ve been
pleased to see his personality and curiosity return. In fact, when he was
little, Ed used to call Alex “Mr. Curious” because he was always checking out
things and asking questions about them. We enjoy his inquiries because not only
do they show he’s alert and aware, but they also give us a glimpse into how his
mind works.
One area of his questioning has to do with the past. He has
an interest in things that happened before he was born or things he can’t
remember because he was too little. As I’ve explained in previous blog entries,
Alex qualifies everything by numbers, so calendars and clocks and dates are
very important to him. The past few weeks, he’s been asking about when various
businesses in town opened. Specifically, our town has a new hospital that
opened in August, and Alex wanted to know more about the old hospital it
replaced, especially since he was born in the old hospital. Fortunately, I was
able to find some information online about the old hospital and when it opened,
which was exactly what Alex wanted to know. In addition, he has had a recent
fascination with the part-time job I had while I was in college as a waitress
at the Big Wheel Restaurant. Not only did he want to know the exact dates when
I started and stopped working there, but one day he also wanted me to tell him
everything that was on the menu. This seems to be another nostalgic exercise
for him because although the Big Wheel closed a few years ago, Alex remembers
going there when he was younger. To enhance his trip down Memory Lane, he has
been asking me to fix one of the special dishes from the Big Wheel, the Wheel
Steak. Perhaps eating a familiar dish
from the restaurant jogs his memory so that he can remember the times he spent
at the Big Wheel. Now I need to teach him about leaving a tip for the waitress.
Besides reminiscing, Alex has also been spending a lot of
time thinking about theological concepts, but, of course, they reflect his
unique perspective. Lately, he has a great deal of curiosity about what God can
do, where heaven is, what it will be like, and what we will be like when we get
there. Although I have no good answers to his good questions, he has been
satisfied when I have told him that only God knows or that he’ll have to wait
and see when he gets to heaven. Since
I’ve been intrigued by some of the questions he’s posed, I’ve been jotting
them down whenever he asks them. Here are some of Alex’s recent inquiries:
“Has God used the graphing calculator before?”
“Does God know all the pi digits?”
“Where are heaven and hell?”
“What is the address for hell?”
“How long does it take to get to heaven?”
“Can you call heaven? What’s the phone number?”
“Is there a Heaven.com?”
“What road goes to heaven?”
“Are there clocks in heaven? Will there be time in heaven?
Do they have stopwatches in heaven? Do they have timers in heaven?”
“How much will we weigh in heaven?”
“What will our heavenly bodies look like?” (after I told him
we’d have new bodies in heaven in response to his question about weight in
heaven)
“Will you have birthmarks in heaven?”
“What color will your eyes be in heaven?”
“What voice will you have when you get to heaven?”
“Can you sleep when you get to heaven?”
“Will people have tempers in heaven?”
Besides all of his interesting questions about God and
heaven, Alex has also asked some things that make me wonder how his mind works.
One day, he suddenly asked, “Do dogs have better memories than cats?” Even more
puzzling was the day he apparently wanted to try parenting and asked, “Can you
[meaning “I”—he still reverses pronouns] pretend to have a baby?” As he has
been more alert, he’s paying more attention to what people are saying in person or
on television, which has made him ask about words he doesn’t know. For
instance, while watching the television show The Big Bang Theory the other day, he heard one of the
characters use the word befuddled and asked us what that meant. I was tempted to tell him that I was
befuddled when he asked about pretending to have a baby, but decided against
that. Finally, another question he’s frequently been asking me lately is when
I’m going to retire. I’m not sure if he thinks I’m old, or if he’s just looking
forward to my being home all the time. I
guess he figures that if I retire, that will free my time to make phone calls
on his behalf and answer all his questions about life. In the meantime, I’ll
keep working at the balancing act of my part-time teaching job and my full-time
job of being Alex’s advocate, teacher, and mom, which is my favorite job of
all, especially when he entertains me by asking questions that make me think
about all the good things we have ahead when we actually know what heaven will
be like.
“Call to me
and I will answer you and tell you great and unsearchable things you do not
know.” Jeremiah 33:3
3 comments:
wow, i love alex's questions! so deep!
Fantastic questions!! Alex really has such an amazing and inquisitive mind. Love it!
Hi Marjorie and K.C.,
We're pleased to see Alex alert and curious again after being dull-witted for a while. Thanks for your nice notes--great to hear from both of you!
Fondly,
Pam
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