Alex will turn 21 in less than a month, and one would think
after that much time, I’d pretty much have most things figured out in this task
called mothering. However, from time to time, I find myself temporarily
baffled, engaged in an internal conflict as to what is the best thing to do. In
these situations, Ed usually defers to my judgment, which sometimes adds to my
anxiety, wondering if he really agrees with my decision or if he just thinks he
shouldn’t question my maternal instincts. Anyway, one of those moments arose
yesterday.
As I have written in previous blog entries, since June, Alex
has been dealing with yeast infections in and around his mouth, and we have
relied upon six different doctors or nurse practitioners to have him assessed
and treated. Three of the times, he
became symptomatic on weekends, which meant taking him to a clinic open when
doctors’ offices are not. Once we took him to urgent care when his regular
doctor would not see him since he is now on Medicaid for his autism, and twice
he has seen nurse practitioners at his new family doctor’s office. A couple of
times, I have called the nurse practitioner who oversees his psychiatric
medications on Friday afternoons to get prescriptions over the phone so that we
would not have to take him to the off hours clinics. While all of these health
care practitioners—all women, I might add—have been very sympathetic,
compassionate, and helpful, I wish we had one consistent doctor or nurse
practitioner who has seen him every time for consistency. Nonetheless, all have
agreed upon the same medication for treatment, which is reassuring. This last
round of the antifungal medicine, Diflucan, has spanned a month of daily doses,
which Alex will finish on Monday.
A couple of days ago, I was thinking about this month of
daily antifungals ending, hoping and praying that the medication had finally
kicked out the yeast that has been invading Alex’s mouth. Ready for him to be
healthy after all this time, I was encouraged that his mouth does look better.
Then, this week I came down with a cold that was thankfully mild, which I
attribute to taking Vitamin D drops. Even though my cold wasn’t that bad, I
prayed that Ed and Alex wouldn’t catch the cold from me, and I faithfully
washed my hands to try and keep the germs to a minimum. All week long, I have
watched Alex for signs that—despite my best efforts—he has caught the cold,
too. Fortunately, both Ed and Alex seem to have escaped getting the cold I’ve
had.
With my cold gone, my guys remaining healthy, and the end of
Alex’s yeast treatment hopefully in sight, I thought maybe things were finally
on the right track health-wise. We were getting ready for a trip to Target, one
of Alex’s favorite stores, to pick up a few things when I offered to help Alex
comb his hair. Since he’s nine inches taller than me, the only way I can comb
his hair properly is to have him sit while I stand over him. As I began combing
his hair, which I had cut fairly short last weekend, I noticed a red splotch in
his scalp that had not been there the previous day. Looking more closely and moving aside his hair, I saw that the red
splotch was not just inflamed skin on his scalp but oozing fluid. This fiery
red weeping sore was about an inch in diameter on the crown of his head. Having
never seen anything like it, frankly, it scared me.
Not wanting to send Alex into panic mode, I knew better than
to let him see my fears or let him know how bad the spot on his head looked. I
told him he had some sticky stuff in his hair that I wanted to wipe with a
washcloth, and he was agreeable. As I dabbed the sore spot, he never flinched
or complained, which was a good sign. I asked him if his head hurt, and he said
no, another positive. When Ed came to see why we were taking so long to get
ready, I motioned him over and pointed to the sore on Alex’s head, and I
suspect the facial reaction of shock he had was the same I had when I saw it
for the first time. He mouthed, “What is it?”
In response, I shrugged my shoulders. However, I suspected an infection,
so trying not to alarm Alex, I suggested we take his temperature, which was
only slightly above normal. Nonetheless, my mother’s instinct that didn’t quite
know what the cause of this sore was made me think that we needed to have it
checked, so we headed for the CVS Minute Clinic here in town, where we had been
pleased to get Alex such good care several weeks ago when his yeast infection
flared on a Saturday afternoon.
Grabbing Alex’s medical file that contains his list of
medications, our legal papers granting Ed and I authority to make medical
decisions for him, and a copy of his Social Security card, I followed Alex and
Ed out the door to the local CVS Minute Clinic. On the way there, questioning
my decision, I asked Ed if I was overreacting to have Alex checked, but he
confirmed my decision by telling me he agreed with me that we needed to have
him examined. Fortunately, we didn’t have to wait at all, and the nurse
practitioner was very sweet and kind to Alex and us. After taking his temperature, pulse oxygen,
and blood pressure, which were in the normal range, and listening to his heart
and lungs, which sounded fine, she took a closer look at the sore on his head,
which she diagnosed as folliculitis, an infected hair follicle apparently
common in teenage boys and young men. She said her own sons had even had the
same thing, which was comforting, especially since she commented that it looks
worse than it really is. To assess whether the infection had spread, she
carefully checked the lymph nodes in his neck and head, all of which were fine.
To treat this infection, she gave us a ten-day run of antibiotics twice a day,
and she recommended that we put antibiotic cream on his head to help heal it.
The only concern we had about the antibiotics is that they can cause yeast
overgrowth, which we’ve been fighting for months. She said that since he’s been
on antifungals, he should be fine. Nonetheless, I will double his dose of
probiotics to keep his digestive tract in good order while he’s on the
antibiotics and hopefully keep the yeast from repopulating his mouth again.
Satisfied that Alex’s newest ailment had been quickly,
properly, and accurately diagnosed, Ed and I were content that we had a plan to
treat the infection on Alex’s scalp. In the words of Saturday Night Live
character Roseanne Roseannadanna, though, “It’s always something! If it’s not
one thing; it’s another.” Last night as Alex was getting ready for bed, I
noticed a small spot on his shoulder, and upon taking a closer look, I saw that
it’s some type of fluid-filled blister. A closer inspection revealed a similar tiny
blister just below his ear. Of course, that sent me to the Internet to see what
these strange blisters could be. With no definitive diagnosis, I’m hoping that
the antibiotic will take care of them, as well. If not, we’ll be headed back to the doctor yet
again. In the meantime, I thank God for the compassionate doctors and nurse
practitioners who have been taking care of Alex and for God’s healing that
surpasses anything humans can do. As we wait, I’ll keep a close eye on that
sore and those blisters, praying that they disappear quickly and making sure
that I do all Alex needs for me to do as his mother and caretaker.
“For our present troubles are small and won't last very
long. Yet they produce for us a glory that vastly outweighs them and will last
forever!” II Corinthians 4:17
8 comments:
The best thing a mama can do is follow her instinct! I hope the antibiotic clears up Alex's sores without exacerbating the yeast infection.
Oy, what a lot to contend with. Quick healing to Alex and good luck and patience to you!
My son had this when he was little--the pediatrician recommended Hibiclens in the bath water
HI Pam,
I'd love to meet you sometime. We have such similar stories.
Please check out our new foundation at
jmtf.org
John was hospitalized last year for 5 weeks and almost died. We are very closely integrating psychiatric care in our new model.
Best,
Julie Tracy
Dear K.C. and Marjorie,
Thanks for your nice notes and good wishes. As you'll see in this week's blog entry, Alex is doing much better!
Fondly,
Pam
Dear Kari,
Thanks for your note and great tip; I appreciate your sharing the information about Hibiclens. :)
Take care,
Pam
Dear Kari,
Thanks for your note and great tip; I appreciate your sharing the information about Hibiclens. :)
Take care,
Pam
Dear Julie,
Thank you for your nice note and for telling me about your website. I'm so impressed with the work your family is doing to help adults with autism through the foundation you have established. I'd like to know more about your son because I think he has a lot in common with Alex, and I would love to meet you some time, too. We definitely need to be in touch so that we can compare notes as we work to help our sons reach their full potential.
Take care,
Pam
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