As I have mentioned in previous blog entries, Alex loves
clocks and calendars because they help him keep track of time, one of his
favorite concepts. In addition, he likes for us to make daily schedules so that
he can anticipate what events each day holds for him, especially his favorite
activities—eating, going places, and showering. We keep a basic schedule posted
on our refrigerator that he consults a few times a day; plus lately he has
requested a more specific schedule for each day that I write for him on memo
pad paper. These daily lists are never far from his sight as he often carries
them around with him or places them next to his alarm clock where he can
compare the schedule to the actual time. Somehow knowing what’s ahead for him
not only allows him to look forward to favorite activities, but also gives him
a sense of calm to reassure him that “there is a time for every activity under
heaven.” (Ecclesiastes 3:1)
While this need for routine is common among people with
autism, I suspect Alex has also inherited my need for organization. My friends
at work have teasingly nicknamed me “Pamodex” because of my organizational
skills along with my logical physical and mental filing systems that allow me to find
needed information quickly, just as a Rolodex does. [When I consulted the
Rolodex website to check the spelling, I ran across a quote that applies to
their product and my own life, as well: “Because when you’re organized you
can…go live your life.”] Like Alex, I find making lists helps me plan and
prepare for upcoming activities, and knowing what I’m doing and where I’m going
gives me a sense of peace, too.
Although Alex and I share a need for planning, I’ve found
lately that some of our best times are those that occur spontaneously, never
appearing on our beloved lists or schedules. Recently, Alex asked to go places,
but we really didn’t have anyplace we needed to go, nor had we planned
anything. Ed suggested on the spur of the moment that we go to Ogden Gardens, a
local park filled with trees and flowers where he often takes beautiful
photographs. This particular day had perfect weather—sunny and warm with a nice
breeze. As we walked around leisurely, Ed took pictures of the scenery while
Alex and I just enjoyed being outside on a beautiful day. At one point, we came
across a new addition to the park, a small statue of a turtle, which caught
Alex’s attention. For years, one of Alex’s favorite attractions at our county
fair was a tortoise that was over one hundred years old. Most children had no
interest in the tortoise that barely moved, preferring the more active goats
and llamas, but Alex loved that old tortoise. Perhaps seeing the turtle statue
in the park reminded him of his old friend because he stooped down to get a
closer look and ran his hand across the smooth shell of the turtle statue.
Fortunately, Ed was able to capture that earnest action with his camera—an
unexpected moment that brought Alex joy.
Last night, I was watching one of my favorite movies, The
Secret Life of Bees, when Alex came and sat beside me. Now, Alex rarely enjoys
anything that has much of a plot, let alone a “chick flick” like Bees. In fact,
I think the only movie he has probably ever watched from start to finish is Shrek.
Although I seriously doubt that he had any interest in the movie, he sat with
me for nearly two hours, keeping me company. At one point during the movie, he
gently patted me on the shoulder and grinned, a sweet gesture that brought
tears to my eyes. If I had asked him if he would like to watch the movie with
me, he probably would have told me no. That he chose on his own volition to sit
with me and share an activity I liked made this spontaneous activity even more
special to me. Considering that several months ago, he often acted as though my
presence annoyed him, Alex’s willingness to spend time with me, along with his
apparent enjoyment of doing something I like more than he does, made this
seemingly mundane time one I savored.
This morning, Alex asked me to play gospel music for him.
One of his favorite CD’s is Alan Jackson’s Precious Memories, a collection of
traditional hymns by Alex’s favorite country singer. The uplifting lyrics of
faith and praise, along with the beautiful melodies, make him smile and remind
me of my childhood growing up in church singing these hymns. As we listened to the
old standards of “In the Garden,” “The Old Rugged Cross,” “What a Friend We
Have in Jesus,” and others, Alex and I enjoyed listening to these songs we have
heard many times before. Once again, we shared a special time that we hadn’t
planned; this time he initiated the activity and allowed me to enjoy it with
him.
While the summer was filled with paperwork, appointments,
and planning for Alex’s future, the spontaneous joys we have found the past few
weeks have reminded me that even though schedules are necessary for the
obligations in life, we must be open to the unplanned activities that surprise
and delight us. How blessed I am to have a child who teaches me the lessons I
need to learn!
“You can make many plans, but the Lord’s purpose will
prevail.” Proverbs 19:21
2 comments:
I finished reading this with happy tears in my eyes! I'm glad that spontaneous actions and moments have their place and that you're both open to seeing the joy in those moments!
Thanks, K.C.! When Alex is happy, Ed and I are even happier. :)
Love,
Pam
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